In a post on Facebook today, Beutler announced the birth of her daughter and said little Abigail Rose Beutler is doing well — two weeks later.
"With great joy, gratitude and hope, we are pleased to share with you the news of the birth of our daughter, Abigail Rose Beutler, on Monday, July 15 at 3:13 AM at Emanuel Legacy hospital in Portland. She weighed two pounds, twelve ounces and was only 28 weeks along. She is every bit a miracle.
A few weeks ago, we shared the news of her diagnosis of Potter’s Sequence. In Abigail’s case, Potter’s was caused by bilateral renal agenesis. The condition caused a complete absence of amniotic fluid, critical for lung development in the womb. Multiple doctors explained that based on medical evidence her condition was incompatible with life and that, if she survived to term, she would be unable to breathe and live only moments after birth. We were also told that dialysis or transplant were not possible. The options we were offered were termination or “expectant management,” that is, waiting for her to die. Instead, we chose to pray earnestly for a miracle. Many of you joined us.
Through the outreach of a parent who had faced a similar situation, we found a group of courageous and hopeful doctors at Johns Hopkins who were willing to try a simple, but unproven treatment by amnioinfusion. Every week for five weeks, doctors injected saline into the womb to give Abigail’s lungs a chance to develop. With each infusion we watched via ultrasound as Abigail responded to the fluid by moving, swallowing and “practice breathing.” The initial lack of fluid in the womb caused pressure on her head and chest, but over the course of the treatment we were able to watch them reform to their proper size and shape. Her feet, which were clubbed in early ultrasounds, straightened. There was no way to know if this treatment would be effective or to track lung development, but with hearts full of hope, we put our trust in the Lord and continued to pray for a miracle..."
(continue reading full article)